Tuesday, May 29, 2012

The early months of AML... | The Leukemia & Lymphoma Society ...

Hi Saff,

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For what it's worth, I was thinking the same thing as Tex - some PT might help quite a bit.? While I'm not a transplant patient, it is my "Plan B" and for that reason (and because I'm a geek) I tried to learn everything I could about the process.? I've been posting on this site for over 3 years now, and my impression from the journeys I've witnessed on the transplant forum is that the folks who train for their transplant like they are training for some sort of athletic endeavor do, overall, the best with it.? If we can get him moving, I think he will be so much more resiliant and able to fight his way through the whole process.

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It really does seem like the knee is adding insult to injury (or perhaps it's the other way round ), but regardless of what we're faced with, we're all in a battle here.? There are ways, I'm sure, to work around the knee injury and help him hold onto what fitness he has, or even build him up some.? We actually have a PT gal (Karen) who posts on here sometimes - her handle is felursus.? You might consider sending her a private message to see if she has any suggestions for him - she's pretty resourceful.

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I think one of the most important pieces of advice I got when I was first hospitalized was to only use the bed for sleeping - to get up each day, be as active as possible, and to pretend I was not sick (and scared out of my mind!)? I took that advice to heart and I truly think it paid off.? I'm over three years out now with chemo only, and just gaining steam.?

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Sending you both my best wishes.? Please keep us posted.?

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- WBF

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